Citizen Use Cases

The Smart4Health platform is developed along citizen use cases (CUCs) to feedback to platform development, to assess implemented functionalities and feed into validation. The CUCs shall connect real life setting examples of enabled citizens that manage, collect, access and share own health and healthcare data.

High prevalence health issues shall be addressed with high relevance and societal and economic implications. Full range of citizens are concerned at different age and across society, MS and languages. The CUCs shall comprise hospital and care, at work and at the workplace, travelling and in daily life. The stages of diagnostics, treatment, prevention, occupational health and practical involvement of the workforce shall be addressed. All use cases are performed using the 4HealthPlatform (4HP) and services.

Umfassende Zusammenarbeit zwischen den USA und der EU in Bezug auf Patientenakten

Die Gesundheitsdatenplattform wird für Sie nach in New York ermittelten, bewährten Methoden entwickelt. Im Gesundheitsmanagementsystem des Mount Sinai-Krankenhauses in New York finden sich Millionen von elektronischen Patientenakten, die aus zahlreichen Arten von Daten bestehen. Diese Patientenakten enthalten Informationen wie Patientenzusammenfassungen, Testergebnisse, Diagnosen und in einigen Fällen sogar genetische Daten. Diese Informationen werden identifiziert und in die 4Health-Plattform aufgenommen, wobei der Schwerpunkt auf der Datenstruktur liegt. Mithilfe dieser Daten können unsere Smart4Health-Backend-Entwickler ermitteln, welche Funktionen effektiv sind und welche Datenelemente vorhanden sein sollten, damit Sie als EU-Bürger Kontrolle über und Zugriff auf Ihre eigenen Gesundheitsinformationen haben. Patienten des Universitätsklinikums Aachen in Deutschland, des Universitätsklinikums Maastricht in den Niederlanden und von Teilen des Ospedale San Raffaele in Italien werden die entwickelte Plattform pilotieren, um ihre Funktionalität zu bewerten.

Die Mount Sinai-Daten werden auch als großzügige Grundlage für die Entwicklung unserer Forschungsplattform dienen, die den Nutzern der 4Health-Plattform reale Ergebnisse liefern soll. Der Bürger-Anwendungsfall in diesem Projekt soll es den europäischen Bürgern ermöglichen, durch die Entwicklung unserer Forschungsplattform MyScience Einblicke in ihre Gesundheit zu erhalten. Durch die Verwendung von Millionen von anonymisierten Patientenakten aus dem Mount Sinai-Krankenhaus können Bürger von der Verfügbarkeit bereits aufbereiteter Daten aus den USA profitieren.

Bürger, die die 4Health-Plattform nutzen und sich damit einverstanden erklären, ihre Daten für Forschungszwecke zur Verfügung zu stellen, erhalten im Zuge des Wachstums der Gesamtdaten neue Erkenntnisse. Wir werden mit vorläufigen Mount-Sinai-Daten beginnen und darauf aufbauen, sobald neue EU-Bürgerdaten erfasst werden. In Verbindung mit ihren eigenen Daten können diese Forschungsergebnisse in Form von Community-basierten, krankheitsbasierten oder individuellen Wellness-Erkenntnissen vorliegen.

Full Health Record collaboration between US and EU

A health data platform developed for you using New York City best practice digital health records. The Mount Sinai Health System in New York City has amassed millions of electronic patient health records that are comprised of numerous types of data. These patient records contain information such as patient summaries, test results, diagnoses, and some even have genetic data. This information will be de-identified and ingested into the 4Health platform, with specific emphasis on the data structure. Using this data will help our Smart4Health backend developers determine effective functionality and what data elements should exist so that you, as an EU citizen, have agency and access to your own health information. Patients at University Hospital of Aachen in Germany, the Maastricht University Hospital in the Netherlands, and parts of the Ospedale San Raffaele in Italy will pilot this platform once developed to assess its functionality. 

The Mount Sinai data will also serve as a generous foundation for the development of our research platform, designed to provide real-world findings to 4Health platform users. The citizen use case in this project is to enable European citizens to receive health insights through development of our research platform, MyScience. Using millions of Mount Sinai de-identified patient health records, citizens can benefit from the availability of already prepared data from the US.

Citizens who use the 4Health platform and consent to share their data for research will in turn be provided with novel findings as the overall data grows.  We will start with preliminary Mount Sinai data and build on top of it with new EU citizen data as it is collected. In conjunction with their own data, these research output may come in the form of community-based, disease-based, or individual wellness insights.

Full Health Record throughout EU

Access, share and update your health data everywhere in Europe. Citizens, as patients at University Hospital Aachen in Germany, are provided with a full electronic health file called “FallAkte Plus”. The file contains information of the entire university hospital environment, far beyond the so-called patient summary and is ingested into the 4HealthPlatform by the citizen. This enables the citizens to manage, collect, access and share their own health and healthcare data throughout the EU.

In this citizen use case, the citizens provide access to their health record for treatment also at other hospitals such as the Maastricht University Hospital in the Netherlands, the Ospedale San Raffaele in Italy and the hospital in Funchal, Madeira.

Back pain and musculoskeletal disease treatment

You oversee and manage all the data corresponding to your treatment even if you choose to visit a different medical center every time. In the citizen use cases we focus specifically on the treatment of back pain as every 3rd EU-citizen suffers from back pain eventually and throughout a single treatment one has to visit multiple different medical centres.

This citizen use case accompanies the treatment of 1,000 citizens with back pain. The muscle strength of the deep back muscle layers and the range of motion of the upper body will be determined by the MedX therapist and the results will be digitally provided to the citizen.  The citizen can provide access to the results of the test and reconsult the medical doctor for diagnostic decision making and to decide the further treatment. The diagnosis with the prescribed treatment scheme and an ePrescription for physiotherapy are again provided digitally to the citizen. Physiotherapeutic exercises are performed using a medical device training unit. These exercises create animated records that the citizen understands and are virtually accompanied by a physiotherapist in targeted sessions.

Back pain and musculoskeletal prevention

You are supported by digital devices during prevention training allowing a sport scientist to monitor your training. The citizen use case will accompany up to 3,000 citizens who work in companies and will join a prevention training over 4 months. The training will be conducted by a sport scientist based on medical devices (MedX lumbar extension machine) for the lower back. If necessary, a medical doctor will be involved. The wearables, smart devices, and textiles are provided to empower the citizens to records and collect their own health data digitally. Each citizen can incorporate self-collected data from wearables, smart devices, the prevention training or textiles to the 4Healh platform. The platform visualizes the data for the citizen and allows to provide the data to any medical practitioner.

Life and workplace, back pain prevention

SYou as a worker are fully in control of preventing back pain at work and at home with a medical doctor on demand. This citizen use case will accompany at least 1,000 citizens by adapting the established conditions in the CUC “Back pain and musculoskeletal prevention”, with emphasis on the needs of workers in dedicated multi-business industry parks in Portugal. Citizen, working in the shop floor or office environment, will have access to the backpain prevention plan and to wearables that will track the posture and other health variables during the citizen daily activities at Home or at Work. The use of wearables will provide an extra step in the data acquisition from other CUCs and will provide the user a wide perspective of his/her posture during the daily routines. This information will provide the Citizen a value resource to improve the posture and Back pain prevention. Existing model implementations in Germany shall be adapted to the cultural, working, sectorial and language environments. Citizens will be able to use their own wearables or have access to devices provided by the project.

In parallel the citizen will have access to the Smart4Health platform where the data will be deposited, empowering the citizen with the possibility to share it with the Health and Safety Office of the company or the medical centre.

Caregivers' workplace, back pain prevention

You as a Caregiver are fully in control of preventing back pain at work and at home with a medical doctor on demand. This citizen use case will accompany at least 1,000 citizens by adapting the established conditions in the CUC “Back pain and musculoskeletal prevention”, with emphasis on the needs of caregivers and nurses as workers in home care setting. It further adds the dimension of interaction of the carer as worker and citizen with the citizens that are taken care of. It enhances the relationship and amplifies possibility to reach out with the technology to citizens that are either heavily affected by back pain as caregivers workforce and on the other hand as care receiving citizens gaining a trusted access to dedicated functionalities that may add value for the citizen. Existing model implementations in Germany shall be adapted to the cultural, working, sectorial and language environments.

Hospital workplace, back pain prevention

You as a worker in an intensive care unit in a high technology and robot-supported environment are fully in control of preventing back pain at work. Establishment of a smart life and workplace environment inintensive care unitsof University Hospital Aachen and University Hospital Maastricht: The use case will involve huge teams of health workforce itself working at the health centres.

 This citizen use case is performed by using tools established in CUC “Back pain and musculoskeletal prevention”, expanded to the needs of caregivers and nurses as workers in a University hospital Intensive Care Unit for at least 500 citizens. It further adds the dimension of interaction of the carer as worker and citizen in the most complex and demanding occupational condition, which is known to cause high rates of inability to work due to physical and mental factors. In addition, a high technology and robot-supported environment provides additional sensor-input of data that is ingested to the 4HealthPlatform. Feedback functionalities, sharing and relationship are key for the citizens in this workforce that are themselves heavily affected by back pain. Trusted cooperation, feedback and sharing can significantly add value for the citizen and for the outcome of the work performed. The existing implementation in the intensive care units at the University HospitalAachen in Germany and the Maastricht University Hospital in the Netherlands shall be adapted for full functionality of the design cases for preventive measures for the workforce as required and based on performance measurements.

Regional health, tourists, preparedness, back pain prevention

You are one of many in a fully integrated environment. This citizen use case is focused on elaborating the 4Health platform to a health system targeting 200,000 citizens in the whole region of Madeira. The Government of Madeira supports the use case and participation for the region with participation of the health care infrastructures and workforce.

The use case focuses on a broad societal use of the platform in a dedicated region and with a cross-border focus. The intention is to address the associated use situations of citizens travelling and spending leisure time in Madeira (with possible cooperative fitness, hiking and training activity), and the citizens living and working in Madeira. Tourists will have access to the Smart4Health platform and will be able to use it via their own, or provided, wearables both while in Madeira as when they return to their home countries. In parallel the Madeira citizens will have access to the platform and wearables that will allow to follow their posture and track their health record in their daily routines. The citizens working in Madeira will have access the back pain and musculoskeletal prevention, provided by a dedicated physiotherapist based on medical devices for lower back. Both tourists and citizens living in Madeira will be empowered with the possibility to store and share their Health Data with their medical doctors or hospitals and medical centres.

A Health Day shall be organised and the citizen use case shall be supported by a communication campaign that will include the key events taking place in Madeira, at the entry gates of the island (Airport and Cruise harbour) and through the tourist information channels of the region.

During the project the electronic health records are exchanged between Madeira health centres, the University Hospital of Aachen in Germany, the Maastricht University Hospital in the Netherlands, and the Ospedale San Raffaele in Italy.